In recent years, technology for analyzing genome has been developed rapidly, and various researches for knowing the relationship between human health, diseases and genome are on-going actively.
In the GS unit, we introduce new genome analysis technologies for the members of the committee / secretariat involved in the ethical review of such researches, as well as those who are interested in the ethics that this new technology brings. We hold “Human genome ELSI meeting” as a place for sharing information and opinions on ethical, legal and social issues (ELSI).
We are planning to pick up new topics every year, so please join us.
“Human Genome ELSI meeting” Part2 Public Symposium
-Present and future of genomic society - How to make use of genome data
In 2017, the Personal Information Protection Act in Japan was fully revised, and accordingly the Research Ethics Guidelines in Japan were also revised. So that the handling of genetic information and genome information has changed significantly. At the meeting, we discussed about the current situation after the enforcement, and also the issues concerning genetic and genomic information, especially concerning genetic discrimination. As a new genome analysis technology, we discussed progress of metagenomic analysis and genetic statistics.
“Human Genome ELSI meeting”
A law to revise the Personal Information Protection Act in Japan was established in 2015 (Heisei 27), and the reviewing of the Research Ethics Guidelines was carried out before its enforcement in 2017 (Heisei 29). At the meeting, we picked up the points of the revision of the laws and the guidelines and examined what kind of responses are necessary at the research sites. We also introduced new genomic analysis technologies such as one-molecule sequencer.