In recent years, genome analysis technology has been developing rapidly and more and more research concerning the relationship between health, disease, and genetics is being conducted. The GS Unit has started a yearly event called “Human Genome ELSI meeting”. The purpose of this event is to gather a variety of people—including members of ethics commissions dealing with genetic research proposals, administrative staff, and people who are interested in this kind of research—and discuss new developments in genome sequencing technology, as well as the ethical, legal, and social issues (ELSI) that accompany these new technologies.
Each year we focus on new and interesting topics, so please come and join us!
"Human Genome ELSI meeting 2017" Part2 Public Symposium
-Present and future of genomic society - How to make use of genome data
In 2017, the Personal Information Protection Act in Japan was fully revised, and accordingly the Research Ethics Guidelines in Japan were also revised. As a result, the regulations concerning the handling of genetic information and genome information has changed significantly. At the meeting, we discussed the current situation after the amendment, and also the issues concerning genetic and genomic information, especially genetic discrimination. We also discussed new fields in genome analysis technology, specifically metagenomic analysis and genetic statistics.
"Human Genome ELSI meeting 2016"
A law to revise the Personal Information Protection Act in Japan was established in 2015 and a review of the Research Ethics Guidelines was carried out before its enforcement in 2017. At the meeting, we discussed several key points concerning the revision of the law and guidelines, as well as what steps would need to be taken at research institutions. We also introduced some new genomic analysis technologies such as the one-molecule sequencer.